Beauty In Cystic Fibrosis
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This is the story of Jade. Josh and Adrienne discovered that their beautiful and precious child had Cystic Fibrosis shortly after she was born. This is the story of beauty even in disease. Go to the website at the end of the video for more information about how you can get involved.
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- 00:10
- We actually found out that she had cystic fibrosis about a week after she was born.
- 00:18
- Adrienne knew that something wasn't right, just by how she was eating and some different things like that.
- 00:24
- So, what I remember was Adrienne went to her first appointment with Jade, and when she came home, she was in tears, just crying, and she couldn't even really talk.
- 00:36
- So, Cheryl was with us, which is our pastor's wife, and she told me, she said,
- 00:42
- Jade has cystic fibrosis, and I didn't know at the time what that meant exactly. I didn't know what that meant for Jade.
- 00:50
- I just knew it was bad. I knew it had something to do with her lungs. So, from there on, we just started planning on how to raise a child with cystic fibrosis.
- 01:02
- It used to be a death sentence for kids. Now, I mean, thank the Lord, we live in a time where the medical technology has come so far.
- 01:11
- Medication has come so far. With any baby, they need to eat a lot, and with her, you can't just feed her.
- 01:21
- She needs medication every time she eats anything. So, that can get time -consuming and stressful, but she's very happy.
- 01:29
- She's very playful, and she's been healthy lately, and it's just really rewarding to see how far she's come.
- 01:39
- What a joy she brings to our family, regardless of what we have to do to keep her healthy. Abortion wasn't even a thing that ever crossed our mind.
- 02:11
- I think that a lot of people look at Jade's condition, and they think,
- 02:16
- Oh, she has something that's going to make her life difficult and hard, and it's going to make your guys' life difficult and hard.
- 02:23
- So, the narrative we're sold is the best thing to do is just kill her. And so, for us, that never crossed our mind, because life is hard in general.
- 02:32
- It's hard for all of us. It's hard for children. It's hard for adults, parents, husbands, wives.
- 02:38
- Life is difficult, and there are many obstacles that we go through. So, abortion never crossed our mind, and we're continuing to have children, knowing that our future children could also have cystic fibrosis.
- 02:51
- Every child we have, there's a 25 % chance, and we're not deterred from having children.